Basic Science
Basic scientific research is leading the way in establishing new ways to modify disease processes, improve survival and improve quality of life. Intensive efforts are underway by researchers to better comprehend the genetics of many diseases in respiratory and pulmonary vascular disease.
Links
Links
Asthma
- www.asthmacare.ie
- www.ncnm.ie/anail/about.asp (Respiratory Nurses Association of Ireland(ANAIL)
- www.asthmasociety.ie
Smoking Cessation
- www.giveupsmoking.ie
Find help & advice on how to quit smoking for good with HSE
Lung Cancer
- www.imj.ie/Archive/Lung_Cancer_Guidelines.pdf
- Irish Cancer society
www.cancer.ie/CancerInfo - www.immunotherapyforcancer.info
This site is designed for people with lung cancer and their families who may be interested in finding out about this potential new treatment that is being studied in clinical trials. - LungHealthArticles.info
- The NICE lung cancer clinical guideline covers the full range of care that should be to adults who have lung cancer. They include how the diagnosis should be made and the treatments that should be offered at different times.
To read the full summary click on www.nice.org.uk/CG24
Health Professional Organizations
Respiratory
- American Thoracic Society (ATS) http://www.thoracic.org/
- European Respiratory Society (ERS) http://www.ersnet.org/
Cardiovascular
- European Society of Cardiology (ESC) http://www.escardio.org/
- The American College of Chest Physicians http://www.chestnet.org/
- American Heart Association http://www.americanheart.org/
- International Association for Adult Congenital Cardiac Disease http://www.isaccd.org
- International Society for Heart and Lung Transplantation http://www.ishlt.org
Rheumatology
- The European League Against Rheumatism (EULAR) http://www.eular.org/
- American College of Rheumatology http://www.rheumatology.org/
HIV
- HIV Medicine http://www.hivmedicine.com/
- PAH Resource Center: http://www.medscape.com/resource/pulmarthypertension
PHA
The following is a comprehensive list of pulmonary hypertension patient associations from around the world:
PHA Europe (e-mail only)
info@phaeurope.org
PHA International
Pulmonary Hypertension Association (PHA) acts as a hub for international PAH work. The mission of the PHA is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.
http://www.PHAssociation.org/intl
Argentina (e-mail only)
PHA Argentina
mdiez@ffavaloro.org
Austria
PHA Austria
http://www.phaaustria.org
Australia
PHA Australia
http://www.phaaustralia.com.au
North South Wales Support Group (e-mail only)
jenniferlouisehodges@hotmail.com
Belgium
PH vzw Belgium
www.ph-vzw.be
Brazil
Associacao Brasileira de Amigos e Familiares de Portadores de Hipertensao Arterial Pulmonar (ABRAF)
www.respirareviver.org.br
Canada
Pulmonary Hypertension Association of Canada (PHA Canada)
www.phacanada.ca
Canada - Alberta
Calgary Pulmonary Hypertension Support Group (e-mail only)
sharonproudfoot@yahoo.com
Edmonton Pulmonary Hypertension Support Group (e-mail only)
havinfun667@hotmail.com
Canada - British Columbia
British Columbia Pulmonary Hypertension Society (BCPHS)
www.bcphs.org
University of British Columbia PH Society (UBCPHS) (e-mail only)
ania_2@hotmail.com
Canada - Manitoba
The Manitoba Pulmonary Hypertension Support Group
http://ca.geocities.com/mb_ph_group/
Canada - Ontario (e-mail only)
The Pulmonary Hypertension Society of Ontario
phs@mnsi.net
Canada - Quebec
PPH Quebec Support Group
http://groups.msn.com/PPHQuebec
China
PHA - China
www.phachina.com
Columbia
Fundación Colombiana de Hipertension Pulmonar
www.hipertension-pulmonar.org
Czech Republic
Sdruzeni Pacientu s Plicni Hypertenszi
www.pph.cz
France
HTAP (HyperTension Artérielle Pulmonaire) - France
http://www.htapfrance.com
Germany
Pulmonal hypertonie e.v. - Germany
http://www.phev.de/
Greece
PHA Greece (e-mail only)
giannoulis_phagr@yahoo.gr
Ireland
Pulmonary Hypertension Association - Ireland
http://www.mater.ie/pha-ireland/
Israel
PH Israel (Pulmonary Hypertension Israel)
www.phassociation.org/intl/Israel
Italy
AMIP (Associazione Malati Ipertensione Polmonare) - Rome
www.assoamip.net/
AIPI (Associazione Ipertensione Polmonare Italiana) - Milan
www.aipiitalia.org/
Japan
PHA - Japan
http://www.pha-japan.ne.jp/
Latin America (US reg.)
La Sociedad Latina de Hipertension Pulmonar
http://www.sociedadlatinahp.org/
Mexico
AMHAP (Asociacion Mexicana de Hipertension Arterial Pulmonar) - Mexico
http://hapmx.ods.org
The Netherlands
PHA - Nederland
www.pha-nl.com
Norway
PHA Norway
www.pha-no.com
Peru (e-mail only)
Asociación Peruana de Hipertension Pulmonar
marielatc@terra.com.pe
Romania
Pulmonary Hypertension Association Romania
www.htap.ro
Singapore
Singapore PH Support Group (e-mail only)
smamub@yahoo.com.sg
South Africa
Pulmonary Hypertension Association South Africa
www.phsa.co.za
Southeast Asia
PHA SEA (e-mail only)
smamub@yahoo.com.sg
Spain
Asociación Nacional de Hipertension Pulmonar
www.hipertensionpulmonar.es
Sweden
Hjärt- och Lungsjukas Riksförbund
www.hjart-lung.se
Reumatikerförbundet
www.reumatikerforbundet.se
Switzerland
HTAP Revivre
www.saph.ch/SuisseRomande
Taiwan
Taiwan Foundation for Rare Disorders (TFRD)
www.tfrd.org.tw
Turkey
PHA Turkey
www.PHA-Turkey.com
UK
Pulmonary Hypertension Association UK
http://www.phassociation.uk.com
US
The Pulmonary Hypertension Association (PHA) (USA)
http://phassociation.org/
Pulmonary Hypertension: The Complete Resource (USA)
http://phcentral.org
Scleroderma Foundation USA
http://www.scleroderma.org
International Scleroderma Network (USA)
http://www.sclero.org

